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Hey Zebras!!
It's been a while. I wont bore you with my excuses. I'm sure that you all can understand.
I'm stopping by to give you a message from a new member bluetennies
"Hi, I somewhat recently started a blog on all things Ehlers-Danlos related, with special emphasis on treatment of symptoms, breakthrough research, and current news articles. If anyone in this group would like to check it out it's found at mutatedspawn.blogspot.com."
I suggest that you all check it out!! They have some really good information there and where I haven't been able to keep up with posting many useful things here.
I hope you're all well!
-Michaela
A Section For Discussion About EDS Management?
Would you like a category here for "EDS / HSD Management?" It may be a bit empty at first, but I'd encourage you to share important (and maybe life-saving) things you've learned through time about how certain medical procedures and drugs may not interact well with somebody who has EDS (or related conditions.) I think this can be especially useful for those who were recently diagnosed, or someone who is a caretaker of them.
Some topics for discussion (maybe):
o Particular brands / types of mobility aids you recommend
o Exercises for at-home physical therapy
o Medicine contraindications / lesser known side effects you should know
o More ways t
We Have Another Co-Founder?
🦓✨Hi Zebras!🦓✨
My name is Doc, and I've been looking for people who share similar experiences to mine for some time since I had been diagnosed with classic type Ehlers-Danlos syndrome, shortly followed up with muscle atrophy that was caused by a series of intentional medical malpractice incidents. As a clinical biochemist, I'm researching degenerative diseases, hormones, and a few other things.
It means a lot to know there are others who have similar problems. This might be why having a community is important to them.
I plan on making the group more active. Recently, I was invited to be co-founder by the owner
Hello Zebras
:thumb307287490:Hello Zebras :thumb307287818:
It's been a long time since you heard from me and I am curious if we still have any active members! I haven't forgotten about all of you but life has definitely been taking its toll on me. I have been very sick and have only been getting sicker but I am still fighting.
:thumb325394346:
I would love to hear from you all and hear how you are doing. =)
Have pride zebras and keep on dazzling!
:thumb307287325:
EDS Awareness Month
:thumb307287490: It's May again :thumb307287818:
and you know what that means!
I know that this group isn't very active. I've been struggling with a lot of illness these past few years. But I would love it if this month everyone submitted their EDS related artwork in honor of this month and spreading awareness for this horrible condition that plagues us.
And notice for all members, especially new ones. You can send me a note any time. If you post a message on the group here I might not see it thanks to the fact that DA does not give me an alert about those for whatever reason. But if you send me a note, I promise that I will respond. I am o
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